Bibliography
A Psychiatric Survivor’s Book List
(compiled by Erick Fabris, Feb. 2007)
Download the PDF.
This booklist is still growing and far from exhaustive.
I would welcome any suggestions on adding to it. It includes
newspaper articles, academic theses, and anything in between.
It is an open, non-alphabetized, list of challenging readings
regarding psychiatry, institutionalization and paternal
law. The voice of psychiatric survivors is honoured, as
are books on gender, race, class, and disability. Online
sources are listed first in each section and may not be
up to date. The sections of this list are:
psychiatric survivor experiences
‘family’ writings
who’s story is it?
psychiatry
history of psychiatry
de/institutionalization
legal rights
coercion and force in treatment
community treatment orders and assertive community
treatment teams
‘stigma’ and discrimination
the violence myth
gender, race, culture, and class interconnections
drugs (psychopharmaceuticals)
electroshock, lobotomy, sterilization, euthanasia
homelessness (under construction)
genetics
antipsychiatry and sociology
disability issues
feminism
self-recovery in long term studies
‘psychosocial’ responses with minimal
to no drug use
alternatives to psychiatric intervention
self-help and emotional guides
getting off ‘medication’
philosophy
spirituality
misc (under construction)
Psychiatric Survivor
Experiences
Download a listing of First Person Narratives by Psychiatric
Survivors at:
http://www.psychiatricsurvivorarchives.com/MadTitles.doc
Canadian
Starkman, M. (1981). The movement. Phoenix Rising: The Voice
of the Psychiatrized, 2(3), 2A.
Starkman, M. (1982). “Why I supported the sit-in”.
Pheonix Rising: The voice of the psychiatrized. August-September
1983. Volume 3, Number 1.
Supeene, S. L. (1990). As for the sky, falling: A critical
look at psychiatry and suffering. Toronto: Second Story Press.
Gibson, M. (1976). The Butterfly Ward. Toronto: Harper Collins.
Shimrat, I. (1997). Call Me Crazy: Stories from the Mad Movement.
Vancouver: Press Gang.
Funk, W., (1998). What difference does it make? The Journey
of a Soul Survivor. Cranbrook, B.C.: Wild Flower.
Carten, R. (2006). The AIMS test, Mad pride and other essays.
Vancouver: Keewatin Books.
Grant, R. (1982). “Outside the Butterfly Ward”.
Pheonix Rising: The voice of the psychiatrized. November 1982.
Volume 3, Number 2.
Jull, I. (1997). Nietzsche, psychiatry and the state. Psycho
Magazine: Queen Street Patients Council Voice, 8. Retrieved
September 7, 2005, from http://www.qsos.ca/qspc/psycho/8.html]
Mental Patients Association. (1974). Madness unmasked: The
mental patients association creative writing book. Vancouver:
Mental Patients Publishing Project.
Burstow, B. & Weitz, D. (Eds.). (1988). Shrink Resistant:
The Struggle Against Psychiatry. Vancouver, Canada: New Star.
Everett, B. (2000). A Fragile Revolution: Consumers and Psychiatric
Survivors Confront the Power of the Mental Health System.
Waterloo, Ontario: Wilfrid Laurier University Press.
International
http://www.camhindia.org/first_person_stories.html
http://www.suitcaseexhibit.org/indexhasflash.html
Linda Morrison Talking Back to Psychiatry: The Consumer/Survivor/Ex-patient
Movement.
Chamberlin, J. (1978). On our own: Patient-controlled alternatives
to the mental health system. New York: McGraw-Hill.
Chamberlin, J. (1990). “The ex-inmate’s movement.”
Journal of Mind and Behaviour, 323.
O’Hagan, M. (1993). Stopovers on My Way Home From Mars.
UK: Survivors Speak Out.
Modrow, J. (1995). How to Become a Schizophrenic: The Case
Against Biological Psychiatry (2nd ed). Everett, Washington:
Apollyon Press.
Gotkin, J. & Gotkin, P. (1975). Too Much Anger, Too Many
Tears: A Personal Triumph Over Psychiatry. New York: Quadrangle/
The New York Times Book Co.
Barnes, M. and Berke, J. (1982). Mary Barnes: Two accounts
of a journey through madness. Second edition. New York: Penguin
Books.
Behrman, A. (2002). Electroboy: A memoir of mania. London:
Penguin Books.
Greenberg, J. (1964). I never promised you a rose garden.
New York: Signet.
Jamison, K. R. (1993). Touched with fire: Manic-depressive
illness and the artistic temperament. New York: Free Press
Paperbacks.
Markman, A. (1983). “The manufacture of madness: An
interview with Samuel Delany.” Pheonix Rising: The voice
of the psychiatrized. Fall 1983. Volume 4, Number 2.
Millett, K. (1990). The Loony-Bin Trip. New York: Simon and
Shuster.
Schreber, D. P. (2000). Memoirs of my nervous illness. (I.
Macalpine and R.A. Hunter, Trans., Eds.). New York: New York
Review Books.
Hirsch, S., J.K. Adams, L.R. Frank, et. al. eds. Madness
Network News Reader, San Francisco: Glide Publications.
Richter, E.A. (2003). My schizophrenia. Liberty, 17(1).
Retrieved August 12, 2005 from Liberty site: http://libertyunbound.com/archive/2003_01/richter-schizo.html
Historical
Reaume, G. (2000a). Remembrance of patients past: Patient
life at the Toronto Hospital for the Insane, 1870-1940. Don
Mills, Ontario: Oxford University Press.
Reaume, G. (2000b). Portraits of people with mental disorders
in Canadian history. Canadian Bulletin of Medical History,
17(1-2), 93-125.
Anonymous. (1982). Five months in the New York State Lunatic
Asylum. In D. Peterson (Ed.), A Mad People's History of Madness
(pp. 108-122). Pittsburgh: University of Pittsburgh Press.
Belcher, W. (1997). Address to humanity: Containing, a letter
to Dr. Thomas Monro: A receipt to make a lunatic and seize
his estate; and a sketch of a true smiling hyena, 1796. In
Allen Ingram (Ed.), Voices of Madness: Four Pamphlets, 1683-1796
(pp. 129-135). Gloucestershire: Sutton Publishing.
Kempe, M. (1982). The book of Margery Kempe. In D. Peterson
(Ed.), A Mad People's History of Madness (pp. 3-18). Pittsburgh:
University of Pittsburgh Press
‘Family’ writings
Lyden, Jacki. (1997). Daughter of the Queen of Sheba: A Memoir.
New York: Houghton Mifflin.
Shields, Mary Lou. (1981). Sea Run: Surviving My Mother’s
Madness. New York: Seaview.
Neugeboren, Jay. (1997). Imagining Robert: Brothers, Madness
and Survival: A Memoir. New York: William Morrow.
Moorman, Margaret. (1992). My Sister’s Keeper: Learning
to Cope with a Sibling’s Mental Illness. New York: Norton.
Helfgott, Gillian, with Alissa Tanskaya. (1997). Love You
to Bits and Pieces: Life with David Helfgott. New York: Penguin.
Evans, Stan A. (2003). Box of Mustaches: The Darkly Funny
True Story of How Twin Brothers Survived Their Mother’s
Madness. Lincoln, NE: iUniverse.
Townsend, Elizabeth. (1998). Good Intentions OverRuled: A
Critique of Empowerment in the Routine Organization of Mental
Health Services Toronto: University of Toronto Press.
Who’s Story Is It? Narrative
in Social Science
Conway, J.K. (1998). When memory speaks: Reflections on autobiography.
New York: Alfred A. Knopf.
Peters, Susan (2000) Is there a disability culture? A syncretization
of three possible world views, Disability & Society, 15,
4, pp. 583-601.
Barnes, Colin (1997a) Disability and the myth of the independent
researcher, in Len Barton & Mike Oliver ed. Disability
Studies: Past, Present and Future (Leeds: The Disability Press)
pp. 239-243.
(1997). “Psychologist Hornstein urges therapists and
lay people to listen to the mentally ill.” College Street
Journal, Vol. 10, No. 22. South Hadley, Massachusetts: Mount
Holyoke College.
Mcclimens, A. (2004). What difference does it make who is
speaking? Audience, ownership and authority in learning disability
research. Journal of Learning Disabilities, 8(1), 71-88.
Williams, S. (2003) “Beyond meaning, discourse and
the empirical world: Critical realist reflections on health.”
Social Theory and Health, 1:42.
Mishler, E.G. (2005). Patient stories, narratives of resistance
and the ethics of humane care: a la recherche du temps perdu.
Health, 9(4), 431-451.
MacNeil, C & Mead, S. (2005). A narrative approach to
developing standards for trauma-informed peer support. American
Journal of Evaluation, 26(2), 231-244.
MacNeil, C. (2000). The prose and cons of poetic representation
in evaluating reporting. American Journal of Evaluation, 21(3),
239-367.
Frank, AW. (1993). The rhetoric of self-change: Illness experience
as narrative. The Sociological Quarterly, 34, 39-52.
Kirmayer, L.J. (1992). The body's insistence on meaning:
Metaphor as presentation and representation in illness experience.
Medical Anthropology Quarterly, 6, 323-346.
Good, G. (1992). Identity and form in the modem autobiographical
essay. Prose Studies, 15, 99-117.
Maine, D.R. (1993). Narrative's moment and sociology's phenomena:
Toward a narrative sociology. The Sociological Quarterly,
34, 17-38.
Smith, D.E. (1987). The everyday world as problematic: A
feminist sociology. Toronto: University of Toronto Press.
Smith, D.E. (1990a). The ideological practice of sociology,
the conceptual practices of power: A feminist sociology of
knowledge. Toronto: University of Toronto Press.
Elliot G. Mishler. (2005). Patient stories, narratives of
resistance and the ethics of humane care: a la recherche du
temps perdu. Health, Vol. 9, No. 4, 431-451.
Psychiatry
http://www.abess.com/glossary.html
A glossary of terminology used by psychiatric and psychology
workers.
American Psychiatric Association. (1994). Diagnostic and
Statistical Manual of Mental Disorders (DSM IV) (4th ed).
Washington, D.C.: author.
Mental Health Act, RSO 1990, Chapter M. 7.
Mental Health Act, RSBC 1996, Chapter 288.
Torrey, E.F. (1997). Out of the Shadows: Confronting America's
Mental Illness Crisis. New York City: John Wiley & Sons.
Torrey, E.F., & Zdanowicz, M. (1999). Op Ed: The right
to mental illness? New York Post. May 28, 1999.
Sharfstein, S.S. (2005, August 19). Big pharma and American
psychiatry: The good, the bad, and the ugly. A letter from
the President of the American Psychiatric Association. Psychiatric
News, 40(16).
History of Psychiatry
Foucault, Michel. (1965). Madness and Civilization. New York:
Random House.
Marshall, J. (1982). Madness: An Indictment of the Mental
Health Care System in Ontario. Toronto: OPSEU.
Simmons, H. (1990). Unbalanced: Mental health policy in Ontario
(1930-1989). Toronto: Wall & Thompson.
Dwyer, E., (1987). Homes for the Mad: Life Inside Two Nineteenth-Century
Asylums. New Jersey: Rutgers University Press.
Bachrach, L.L., Goering, P. & Wasylenki, D. (Eds.).
(1994). Mental health care in Canada. California, U.S.A.:
Jossey-Bass Inc.
Gourlay, (1998). A Fiscal and Legislative Governance Map
of the Canadian Health and Mental Health Systems. Health Promotions
Unit, Health Canada. Ottawa.
Canadian Mental Health Association. (n.d.). Chronology of
reports, recommendations and plans for mental health care
reform. Retrieved November 10, 2005, from http://www.ontario.cmha.ca/content/mental_health_system/reform_chronology.asp
De/Institutionalization
Braun, P.B., Kochansky, G., Shapiro, R., Greenberg. S., Gudeman,
J.E., Johnson, S., & Shore, M.F. (1981) Overview: Deinstitutionalization
of psychiatric patients: A critical review of outcome studies.
American Journal of Psychiat ry, 138, 736-749.
Johnson, A.B. (1990). Out of Bedlam: The truth about deinstitutionalization.
NY: Harper Collins Publisher.
Black, B.L. (1982). The myth of deinstitutionalization: Interorganizational
maintenance of the medical model in the community. Unpublished
doctoral dissertation, State University of New York at Stony
Brook, New York, U.S.A.
Burris, D.V. (2004). Why the policies of deinstitutionalization
failed. Unpublished masters thesis, State University of New
York, New York, U.S.A.
Chambers, S.D. (1993). Implementing the 1987 Draft Plan to
downsize Riverview Hospital: Expanding the social control
network (British Columbia). Unpublished masters thesis, Simon
Fraser University, Vancouver, Canada.
Johnson, Kelley (1998) Deinstitutionalisation: The management
of rights, Disability & Society, 13, 3, pp. 375-387.
Legal Rights
Canadian
http://www.archdisabilitylaw.ca/index.asp
[disability law resource]
Caulfield, T., Downie J., & Flood, C. (Eds). (2002).
Canadian health law and policy (2nd ed). Toronto: Butterworths.
Bay, M. (2003). The evolution of mental health law in Ontario.
In Mental Health and Patients Rights in Ontario: Yesterday,
Today and Tomorrow. 20th Anniversary Special Report (pp. 14-16).
Toronto, Ontario: Psychiatric Patient Advocate Office.
Secker, B. (2001). Medico-Legal jurisdiction over human decision-making:
A philosophical constructionist analysis of mental competence.
Unpublished doctoral dissertation, University of Toronto,
Toronto, Canada.
Bach, M. (2004). Competent / incompetent: Questioning the
legal and social boundaries of personhood. Unpublished doctoral
dissertation, Ontario Institute for Studies in Education of
the University of Toronto, Toronto, Canada.
Petrunik, M. (2003). “The hare and the tortoise: Dangerousness
and sex offender policy in the United States and Canada.”
Canadian Journal of Criminology and Criminal Justice, 45:
43.
Starson v. Swayze. [2003] 1 S.C.R. 722, 2003 SCC 32.
Mullins v. Levy, 2005 BCSC 1217. British Columbia, Canada.
25 August 2005.
International
Perlin, M.L. (2000). The Hidden Prejudice: Mental Disability
on Trial. Washington D.C.: American Psychological Association.
Dallaire, B., McCubbin, M., Morin, P. & Cohen, D. (2001).
“Civil commitment due to mental illness and dangerousness:
The union of law and psychiatry within a treatment-control
system.” In Busfield, J. (ed.), Rethinking the Sociology
of Mental Health. Oxford: Blackwell.
Dell, S. (1982). “Diminished responsibility reconsidered.”
Crminal Law Review. 809.
Fraser, D. (1991). “Still crazy after all these years:
A critique of diminished responsibility.” In Yeo, S.H.H.
(ed.), Partial Excuses to Murder. Sydney: The Federation Press.
Laberge, D. Landreville, P., & Morin, D. (2000). “The
criminalization of mental illness: A complex process of interpretation.”
In Beaman, L.G. (ed.). New Perspectives on Deviance: The Construction
of Deviance in Everyday Life. Scarborough, ON: Prentice Hall
Alyyn and Bacon, Canada.
Eastman, N. (1994). Mental health law: civil liberties and
the principle of reciprocity. British Medical Journal, 308,
43.
Beck, A.T, Baruch, E., Balter, J.M., Steer, R.A., & Warman,
D.M. (2004). A new instrument for measuring insight: the Beck
Cognitive Insight Scale. Schizophrenia Research, 68(2-3),
319-329.
McCabe, R. & Quayle, E. (2002). Knowing your own mind.
Psychologist, 15(1), 14-16.
Corrigan, P.W., Watson, A.C., Heyman, M.L., Warpinski, A.,
Gracia, G., Slopen, N. & Hall, L.L. (2005). Structural
stigma in state legislation. Psychiatric Services, 56, 557-563.
Kleinman, I. & Schachter, D. (2000). Obtaining informed
consent of patients at risk of Neuroleptic Malignant Syndrome.
Psychiatric Services, 51, 1182-1183.
Human Rights Watch. (2005). Uzbekistan: Psychiatric drugs
used to punish activist. Retrieved November 12, 2005, from
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Ingrid Ménard, Nicol Korner-Bitensky, Bonnie Dobbs,
Nicola Casacalenda, Philip R Beck, Isabelle Gélinas,
Frank J Molnar, Gary Naglie. (2006). Canadian Psychiatrists’
Current Attitudes, Practices, and Knowledge Regarding Fitness
to Drive in Individuals With Mental Illness: A Cross-Canada
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Gillman, Maureen, John Swain & Bob Heyman (1997) Life
history or case history: The objectification of people with
learning difficulties through the tyranny of professional
discourses, Disability & Society, 12, 5, pp. 675-693.
Coercion and Force as Treatment
Goffman, E. (1961). Asylums: Essays on the Social Situation
of Mental Patients and Other Inmates. New York: Doubleday
Anchor.
O’Hagan, M. (2003) Force in mental health services:
International user/survivor perspectives. Paper presented
at the World Federation for Mental Health Biennial Congress,
Melbourne, Australia.
Caplan, R.B. & Caplan, G. (2001). Helping the Helpers
Not to Harm: Iatrogenic Damage and Community Mental Health.
New York: Brunner-Routledge.
Alty, A. & Mason, T. (1994). Seclusion and mental health:
A break with the past. London: Chapman & Hall.
Leifer, R. (2001). A critique of medical coercive psychiatry,
and an invitation to dialogue. Ethical Human Sciences &
Services, 3(3).
Lopez, S. (2005, August 3). Officials bicker as mentally
ill wither. Los Angeles Times.
Dennis, D., & Monahan, J. (Eds.). (1996). Coercion and
Aggressive Community Treatment: A New Frontier in Mental Health
Law. New York: Plenum Publishing Corporation.
Sjostrom, S. (1997). Party or Patient: Discursive Practices
Relating to Coercion in Psychiatric and Legal Settings. Umea,
Sweden: Borea Bokforlag.
Miller, R. D. (1982). The least restrictive alternative:
Hidden meanings and agendas. Community Mental Health Journal,
18(1), 46-55.
Swartz, M. S., Wagner, H. R., Swanson, J. W., & Elbogen,
E. B. (2004). Consumers' perceptions of the fairness and effectiveness
of mandated community treatment and related pressures. Psychiatric
Services, 55(7), 780-785.
Iversen, K.I., Hoyer, G., Sexton, H., Gronli, O.K. (2002).
Perceived coercion among patients admitted to acute wards
in Norway. Nordic Journal of Psychiatry. 56(6), 433-439.
Farabee, D., Shen, H. & Sanchez, S. (2002). Perceived
coercion and treatment need among mentally ill parolees. Criminal
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Elbogen, E. B., Swanson, J. W., & Swartz, M. S. (2003).
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& Wagner, R. (1999). Consumer perceptions of involuntary
outpatient commitment. Psychiatric Services, 50, 1489-1491.
Poulsen, H.D. & Engberg M. (2001). Validation of psychiatric
patients' statements on coercive measures. Acta Psychiatric
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Lenzer, J. (2004). Bush launches controversial mental health
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Stip, E. & Rialle, V. (2005). Environmental cognitive
remediation in schizophrenia: Ethical implications of “Smart
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Canadienne De Psychiatrie, 50, 281–291.
CTO and ACT (Community Treatment
Orders and Assertive Community Treatment Teams)
Canadian
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for updates on CTOs in Ontario
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the right to appropriate treatment. Canadian Journal of Psychiatry,
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O’Reilly, R.L. (2004). Why are Community Treatment
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Szigeti, A. (2001). Ontario's community treatment orders:
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O'Brien, A.M. & Farrell, S.J. (2005). Community treatment
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Fabris, E. (2006). Identity, Inmates, Insight, Capacity,
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masters thesis. Ontario Institute for Studies in Education,
University of Toronto, Toronto, Ontario. Retrievable here.
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Unpublished research. Author.
Canadian Mental Health Association. (2005). A comparison
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White, H., Whelan, C., Barnes, J.D. & Baskerville, B.
(2003). Survey of consumer and non-consumer mental health
service providers on Assertive Community Treatment teams in
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Everett, B. (2001). Community treatment orders: Ethical practice
in an era of magical thinking. Canadian Journal of Community
Mental Health, 20(1), 5-20.
International
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for Civil Justice, & California. Legislature. Senate.
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outpatient treatment: Empirical evidence and the experience
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Geller, J.L. (1986). The quandaries of enforced community
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Monahan, J., Swartz, M., & Bonnie, R. J. (2003). Mandated
treatment in the community for people with mental disorders.
Health Affairs (Project Hope), 22(5), 28-38.
Steadman, H.J., Gounis, K., Dennis, D., Hopper, K., Roche,
B., Swartz, M. & Robbins, P.C. (2001). Assessing the New
York City involuntary outpatient commitment pilot program.
Psychiatric Services, 52(3), 330-336.
Greenberg, D., Mazar, J., Brom, D., & Barer, Y. C. (2005).
Involuntary outpatient commitment: A naturalistic study of
its useand a consumer survey at one community mental health
center in Israel. Medicine and Law, 24(1), 95-110.
Nieves, E.J. (2002). The effectiveness of the assertive community
treatment model, Administration and Policy in Mental Health,
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Gibbs, A., Dawson, J., Forsyth, H., Mullen, R., & Te
Oranga Tonu Tanga (Maori Mental Health Team). (2004). Maori
experience of community treatment orders in Otago, New Zealand.
The Australian and New Zealand Journal of Psychiatry, 38(10),
830-835.
Appelbaum, P. (2003). Ambivalence codified: California's
new outpatient commitment statute. Psychiatric Services, 54,
26-28.
Appelbaum, P. (2005). Assessing Kendra's Law: five years
of outpatient commitment in New York. Psychiatric Services,
56, 791-792.
Dawson, J., Romans, S., Gibbs, A., & Ratter, N. (2003).
Ambivalence about community treatment orders. International
Journal of Law and Psychiatry, 26(3), 243-255.
‘Stigma’ and Discrimination
Gilman, Sander (1982) Seeing the Insane (New York: Wiley
& Brunner/Mazel)
Read, J. & Haslam, N. (2004). Public opinion: Bad things
happen and can drive you crazy. In Read, J., Mosher, J. &
Bentall, R.P. (Eds.), Models of Madness (pp. 161-194). Hove,
UK: Brunner-Routledge.
Larkin, G.L., Claassen, C.A., Emond, J.A., Pelletier, A.J.,
& Camargo, C.A., (2005). Trends in U.S. emergency department
visits for mental health conditions, 1992 to 2001. Psychiatric
Services, 56, 671-677.
Smith, D.E. (1990b). K is mentally ill: The anatomy of a
factual account, texts, facts and femininity: Exploring the
relations of ruling. London: Routledge.
Wahl, O.F. (1995). Media Madness: Public Images of Mental
Illness. New Brunswick: Rutgers University Press.
Tomkins. Shame and Its Sisters, A Silvan Tomkins Reader.
Ed. Sedgewick, E.K. & Frank, A. Duke University Press,
Durham.
Katz, I (1981). Stigma: A Social Psychological Analysis.
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Misc (under construction)
Recovery Without Treatment: NY Times
Recovery in the Mainstream: US News
QSOS
in eye magazine on CTOs...
QSOS
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